HSD vs EDS
There is a lot of confusion on the difference between Hypermobility Spectrum Disorders and hypermobile Ehlers Danlos Syndrome. Contrary to popular belief, one isn’t “worse” than another, one just fits specific criteria. Let’s talk about it!
Hypermobile Ehlers Danlos Syndrome (EDS) is one of 13 types of Ehlers Danlos Syndrome. Even though it is the most common type, its genetic variant is currently unknown. Because of this, a geneticist can only help to rule out other types of EDS. To get this diagnosis, you will need a medical practitioner to walk you through the clinical diagnostic criteria (linked below). Any medical practitioner can walk you through it!
Hypermobile Spectrum Disorders means you have some hypermobility but don’t fit the exact criteria seen above. There are 4 different types:
Generalized - Hypermobility throughout the body
Peripheral - Hands and feet only
Localized - 1 or 2 joints in the same area
Historical Hypermobility - used to have it but now don’t
All types of hypermobility come on a non-linear spectrum which include dysautonomia, mast cell activation syndrome, fatigue, and more. Every person is unique in their presentation and symptoms.
Whether you have hEDS, HSD, or another type of hypermobility syndrome, you are not alone and your symptoms are very real.
We’re here to support you along your journey of learning how to support your body!
Consider What Next - Do you want a diagnosis?
Navigating pursuing a diagnosis can be an emotional situation. Just like anything else, there are pros and cons. I put together this video going over some of my personal experiences which may help you make a decision!
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